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Astrocytoma Grade III... any insight to share?

Posted: Sat Sep 14, 2013 11:26 am
by lprof
A young (34) mother living in the Carolinas (I think) has been diagnosed with Grade III Astrocytoma; she has had surgery and has been told by the surgeon that "even though they got it all, it is fast growing and will come back".
Her family is searching for any helpful insight on treatments and experiences. Thanks!

Re: Astrocytoma Grade III... any insight to share?

Posted: Sat Sep 14, 2013 4:35 pm
by loria
waiting to hear from a friend whose brother had GBM-- they had great docs in Boston -- THey did see someone at Duke as well. WIll try to get that name.

Re: Astrocytoma Grade III... any insight to share?

Posted: Sat Sep 14, 2013 6:16 pm
by loria
my husband (his name is Gord Fishell from NYU) spoke to Rob Wechsler-Reya (who is currently at UCSD burnahm instutue and used to be at duke he reccomends speaking to a Dr. Henry S Friedman-- he is an neuro oncologist and that is where to start. the head of neuro surg is Alan Friedman (no relationship) or another surgeon is John Sampson both were highly recommended....

hope this helps......

Re: Astrocytoma Grade III... any insight to share?

Posted: Sat Sep 14, 2013 6:38 pm
by lprof
Thank you, loria (and Gord)!

http://www.cancer.duke.edu/btc/modules/ ... hipmain20/

http://archive.sciencewatch.com/ana/st/ ... TGlioFrie/

http://health.clevelandclinic.org/2012/ ... +diagnosis

Personally, I have a very good lifelong friend who is undergoing treatment at Duke for Multiple Myloma. He underwent a stem cell transplant in July and although not cancer free, is currently walking 2 miles a day... this after 8 months of horrible pain and multiple fractures.